A rare condition that is WORTHY OF A VOICE
SCHIZENCEPHALY, (split brain) is a neurological disease due to abnormal development of the brain, leading to the characteristic appearance of abnormal clefts in either one or both cerebral hemispheres due to a defect in development that occurs during the period of one to seven months of fetal gestation.
There is NO cure for Schizencephaly, because there is NO research being done!!!!
MOST OF US DON'T LIVE PAST THE AGE OF 18!!!!
MY GOAL IS TO CHANGE THAT!!!!
Treatments are expensive & consists of Physical, Occupational, Speech, Aqua, & Constraint therapy (Just to name a few)! Numerous drugs to help stop & prevent seizures, for many of us that means several kinds every day!
I HAPPEN TO BE ONE OF THE LUCKY ONES THAT DON'T HAVE TO TAKE SEVERAL MEDS EVERYDAY BUT I DO HAVE TO GO TO THERAPY EVERYDAY!!!!
My name is Ethan Wayne, I am 5 years old living with this special condition! I also am also battling hemiplagia of my right side (tho I do try even if its hard for me), Cerbral Palsy (CP), Sensory Perception Disorder (SPD), and numerous developmental delays.
WE DESERVE ANSWERS, PLEASE DONATE TO HELP ME FIND THEM
WE AS A SCHIZENCEPHALY FAMILY NEED YOUR HELP
ALL DONATIONS WILL GO TO RESEARCH!!!
WE ARE LEFT TO FIND OTHER FAMILIES AND ANSWERS ON OUR OWN!!!
WE ARE THE EDUCATORS OF THE HEALTH CARE AND MEDICAL COMMUNITIES BASED ON OUR OWN EXPERIENCES AND THOSE OF OUR EXTENDED SCHIZENCEPHALY FAMILIES!
This is something
I KNOW WE CAN CHANGE WITH YOUR HELP!
I want my story to bring awareness about Schizencephaly and bring hope to all children who struggle with disabilities and diseases. I hope that making people aware of my story will help others open their eyes--and their hearts--to children with disabilities.
Past Awareness Concerts were held in Austin on:
March 24th 2013
and May 19, 2014.
Email us for more details of next event.
Other Websites of Children with brain disorders like Schizencephanly and Lessencephanly
Ethan Wayne Randolph was born in Ohio on November 3, 2008. He now lives in Austin Texas
Novaleigh is 3 years old and lives in Colorado.
Malia Moore.org Lives in San Jose, Costa Rica born on June 17, 2008.
CLICK HERE FOR MORE TEXAS CHILDREN WITH SCHIZENCEPHALY